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We just got a dementia diagnosis for a parent. What actually needs to happen this month?

Very little needs to be decided immediately. Get the specific diagnosis type (Alzheimer's, vascular, Lewy body, frontotemporal all progress differentl

Quick answer

Very little needs to be decided immediately. Get the specific diagnosis type (Alzheimer's, vascular, Lewy body, frontotemporal all progress differently), do legal planning now while capacity is clear -- power of attorney, health care proxy, advance directives -- and connect with NYC Aging (DFTA) through CASC for local support resources.

HomeQuestionsWe just got a dementia diagnosis for a parent. What
Answer

Very little needs to be decided immediately. Get the specific diagnosis type (Alzheimer's, vascular, Lewy body, frontotemporal all progress differently), do legal planning now while capacity is clear -- power of attorney, health care proxy, advance directives -- and connect with NYC Aging (DFTA) through CASC for local support resources.

How families here handle this

The instinct after a dementia diagnosis is often to feel that a major decision -- moving, hiring care, researching memory care communities -- needs to happen right away. In most cases it does not. The first month is much better spent on legal groundwork that becomes far harder to complete later, once capacity to sign documents may be in question.

Understanding New York's specific memory-care certification requirement (SNALR) now, before it becomes urgent, also puts a family in a stronger position later. Knowing what to ask for on a tour -- rather than learning it for the first time during a crisis -- tends to lead to better decisions when the time actually comes to look at communities.

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We just got a dementia diagnosis for a parent. What actually needs to happen this month?

Very little needs to be decided immediately. Get the specific diagnosis type (Alzheimer's, vascular, Lewy body, frontotemporal all progress differently), do legal planning now while capacity is clear -- power of attorney, health care proxy, advance directives -- and connect with NYC Aging (DFTA) through CASC for local support resources.

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